Grandma with the kids
Mom with almost all my kidsMore pics from Mother's day.
My Daughter!
11 years ago
Sunday, May 9, 2010
Mother's Day 2010
May 10, 2010
Mother's days pics. Missing Danielle today but she will be home at the end of the month. There is so much to update about but I will do that in the next post. For now here are pics from Mother's day today.
Sunday, December 20, 2009
Gideon Will Walk!
December 20, 2009
We have been home almost 8 months now and the word we have gotten from the Doctors both at Childrens in Cincinnati and Shriner's Orthopedic Center in Lexington was he will never walk. Get used to the idea of him being a "sitter". Get a powered wheelchair and we'll teach him to use it. I still wasn't satisfied and was feeling very frustrated. Our physical therapist, Molly suggested taking Gideon to Delaware to see Dr. Jay and his team. So in early November I made the appointment. Thursday Dec 17th Gideon myself and my sister Joy began our journey. The drive was supposed to be about 10 hours--North to Columbus then East to Wilmington Delaware across the Penssylvania Turnpike. Our 10 hour trip took 12 1/2 hours. After checking into the Ronald McDonald house and getting Gideon a quick bite to eat it was off to bed. Our appointments began at 9am with Reenee the physical therapist then to Marnie the Occupational therapist and finally with Dr. Jay at 12:45 and meet with all 3 for a plan. After 6 hours there we came away feeling great. Our Gideon will walk, they have no doubt. We have a long road ahead of us with many more trips back up to Delaware and surgery in the future but he will be able to walk. They had him in a gait trainer called the "up and go" and he was trying to walk--It was all so much to take in. He received 2 new sets of splints for his arms and hands and a new set for his legs. He will be fitted for new hip to toe braces in April after he has used these new ones and gone through weekly therapy. Well we were feeling very blessed and happy with the news but.....there was a huge snow storm brewing and we needed to get out of Delaware, sooo after spending all day at the hospital we packed up and hit the road about 4:30 friday evening and drove as quick as legal. We needed to get as far across the Pennsylvania turnpike as possible. The whole area was expected up to 2 feet of snow! Well about 9:00 pm the snow was starting. About 10:30 we were checking into a hotel for the night. It wasn't the nicest place but it had heat and hot water! Through all of this Gideon was an absolute angel. The next morning we awoke to about 8 inches of snow on the ground! After eating and listening to the forcast of continued snow we knew we needed to keep going so after cleaning off the car and purchasing some items for the trip home-gloves, flashlight, lighter, snow scraper, drinks and snacks we were once again on our way. Well as we started to get on the turnpike at the toll gate we asked the man how the roads were and he said they were not good. He said they were very bad and to stop at the next town about 35 miles away and ask them what Interstate 70 looked like before continuing on. He was right the roads were treacherous. But at the next town they said the worst was yet to come so we kept going. We passed 3 serious wrecks but we kept going and praying--we of course had everyone praying back home as well. So after 9 1/2 hours of driving on Saturday Gideon and I arrived home at 8:30 pm. We were carried home on the prayers of many! It was just an amazing trip provided by an amazing God and we are so blessed!
We have been home almost 8 months now and the word we have gotten from the Doctors both at Childrens in Cincinnati and Shriner's Orthopedic Center in Lexington was he will never walk. Get used to the idea of him being a "sitter". Get a powered wheelchair and we'll teach him to use it. I still wasn't satisfied and was feeling very frustrated. Our physical therapist, Molly suggested taking Gideon to Delaware to see Dr. Jay and his team. So in early November I made the appointment. Thursday Dec 17th Gideon myself and my sister Joy began our journey. The drive was supposed to be about 10 hours--North to Columbus then East to Wilmington Delaware across the Penssylvania Turnpike. Our 10 hour trip took 12 1/2 hours. After checking into the Ronald McDonald house and getting Gideon a quick bite to eat it was off to bed. Our appointments began at 9am with Reenee the physical therapist then to Marnie the Occupational therapist and finally with Dr. Jay at 12:45 and meet with all 3 for a plan. After 6 hours there we came away feeling great. Our Gideon will walk, they have no doubt. We have a long road ahead of us with many more trips back up to Delaware and surgery in the future but he will be able to walk. They had him in a gait trainer called the "up and go" and he was trying to walk--It was all so much to take in. He received 2 new sets of splints for his arms and hands and a new set for his legs. He will be fitted for new hip to toe braces in April after he has used these new ones and gone through weekly therapy. Well we were feeling very blessed and happy with the news but.....there was a huge snow storm brewing and we needed to get out of Delaware, sooo after spending all day at the hospital we packed up and hit the road about 4:30 friday evening and drove as quick as legal. We needed to get as far across the Pennsylvania turnpike as possible. The whole area was expected up to 2 feet of snow! Well about 9:00 pm the snow was starting. About 10:30 we were checking into a hotel for the night. It wasn't the nicest place but it had heat and hot water! Through all of this Gideon was an absolute angel. The next morning we awoke to about 8 inches of snow on the ground! After eating and listening to the forcast of continued snow we knew we needed to keep going so after cleaning off the car and purchasing some items for the trip home-gloves, flashlight, lighter, snow scraper, drinks and snacks we were once again on our way. Well as we started to get on the turnpike at the toll gate we asked the man how the roads were and he said they were not good. He said they were very bad and to stop at the next town about 35 miles away and ask them what Interstate 70 looked like before continuing on. He was right the roads were treacherous. But at the next town they said the worst was yet to come so we kept going. We passed 3 serious wrecks but we kept going and praying--we of course had everyone praying back home as well. So after 9 1/2 hours of driving on Saturday Gideon and I arrived home at 8:30 pm. We were carried home on the prayers of many! It was just an amazing trip provided by an amazing God and we are so blessed!
Thursday, June 11, 2009
We're Still Here
June 12, 2009
We haven't disappeared we are just extremely busy. So much has been happening. We have been home for about 6 weeks now and Gideon is doing magnificent. He has adjusted so well to our family and keeps us smiling. He continues to be such a happy baby. We have been seeing many doctors. Some with encouraging news and others not so encouraging. I guess I just haven't wanted to post the not so encouraging news but I want you all to know what has been going on. We have seen another orthopedic Doctor at Childrens who took a lot of time with us, took xrays and thoroughly examined Gideon. His prognosis was that he feels any surgery for the hips and knees would be to risky due to the way his joints are formed and due to the webbing of skin behind the knees and at the pelvic area. He says that the nerves and blood vessels are too close to the service and the risk of causing more harm is too high. He says we should look at him being in a wheelchair the rest of his life. I was not very happy with that news and have talked with our pediatrician and we are pursuing a 2nd opinion with Shriners Hosp in Lexington. We wanted to coordinate this prior to any casting being started on Gideon's clubbed feet--This was also decided - to proceed with the serial casting (Ponsetti Method). Anyway we have an appointment with Shriners June 25th and the casting starts june 29th. We also saw the Pediatric Medicine and Rehab Dr at Childrens who will also follow along. They are recommending to see the Physical therapist for treatment as well as wheel chair fitting. We are trying to find out how much will be covered by insurance and pursue some aid. I have been on the phone a great deal trying to figure it all out. It is all very complicated. We live in northern Ky so go to Cin Childrens Hosp but if we do this we can't get help from Ky--we have to go to Ky doctors--all the way to Lexington. Anyway--we have to think about our house and car as far as being accessible for the wheelchair as well. Needless to say we are a little overwhelmed. It will all work out--because He is in control. He worked miracles to bring this precious little one home and I know he won't stop now.
Anyway Gideon is getting stronger at sitting up. He is talking more and more. He is eating more solids though still hasn't gained any weight. He loves to go for walks and play outside. He now loves the swimming pool and likes to take a bath too! I am back to work 3 days a week and he is doing great with that as well. We are settling in to more of a routine and things feel like they are more back to normal. We are a very busy family but we wouldn't have it any other way! We are so very blessed to have been chosen to be the parents of our 7 precious children. I will post pictures tomorrow. Have to go get all the kids ready for bed. Tim gave me an hour to myself and it is over. I am blessed with a great husband too!
We haven't disappeared we are just extremely busy. So much has been happening. We have been home for about 6 weeks now and Gideon is doing magnificent. He has adjusted so well to our family and keeps us smiling. He continues to be such a happy baby. We have been seeing many doctors. Some with encouraging news and others not so encouraging. I guess I just haven't wanted to post the not so encouraging news but I want you all to know what has been going on. We have seen another orthopedic Doctor at Childrens who took a lot of time with us, took xrays and thoroughly examined Gideon. His prognosis was that he feels any surgery for the hips and knees would be to risky due to the way his joints are formed and due to the webbing of skin behind the knees and at the pelvic area. He says that the nerves and blood vessels are too close to the service and the risk of causing more harm is too high. He says we should look at him being in a wheelchair the rest of his life. I was not very happy with that news and have talked with our pediatrician and we are pursuing a 2nd opinion with Shriners Hosp in Lexington. We wanted to coordinate this prior to any casting being started on Gideon's clubbed feet--This was also decided - to proceed with the serial casting (Ponsetti Method). Anyway we have an appointment with Shriners June 25th and the casting starts june 29th. We also saw the Pediatric Medicine and Rehab Dr at Childrens who will also follow along. They are recommending to see the Physical therapist for treatment as well as wheel chair fitting. We are trying to find out how much will be covered by insurance and pursue some aid. I have been on the phone a great deal trying to figure it all out. It is all very complicated. We live in northern Ky so go to Cin Childrens Hosp but if we do this we can't get help from Ky--we have to go to Ky doctors--all the way to Lexington. Anyway--we have to think about our house and car as far as being accessible for the wheelchair as well. Needless to say we are a little overwhelmed. It will all work out--because He is in control. He worked miracles to bring this precious little one home and I know he won't stop now.
Anyway Gideon is getting stronger at sitting up. He is talking more and more. He is eating more solids though still hasn't gained any weight. He loves to go for walks and play outside. He now loves the swimming pool and likes to take a bath too! I am back to work 3 days a week and he is doing great with that as well. We are settling in to more of a routine and things feel like they are more back to normal. We are a very busy family but we wouldn't have it any other way! We are so very blessed to have been chosen to be the parents of our 7 precious children. I will post pictures tomorrow. Have to go get all the kids ready for bed. Tim gave me an hour to myself and it is over. I am blessed with a great husband too!
Sunday, May 17, 2009
Subscribe to:
Posts (Atom)
