Monday, September 8, 2014

September 8 today was rough and stersful i got my cast off! yay. and i got my new braces and george got his cast off and i took a walk and i thare was a birth day.

Monday, July 21, 2014

July 21,2014

Today is a another day at the ronald mcdonld house tomrrow i go home the time is 8:48 my dream is to be a professional baseball player i hope i walk one step i hope i had surgery a couple days ago it was not fun:(  my mom is calling my dad. 1Month ago on june 24 was my birthday. from gideon

Saturday, October 27, 2012

First Cast Day at Shriners

                                              Gideon posing with his new Wii game while he waits

                                             I'm so hungry I just want to eat!
                                            My new casts-Orange and black for Bengals and Halloween

October 26th
We arrived at Shriners at 930am.  We were greeted by everyone enthusiastically as they all love to see Gideon. He was given a Halloween treat bag and a new Wii game of his choice.  Not to bad.  Dr. Van Bosse and his staff came in and we discussed his upcoming surgery.  He will be sure to give Gideon either an epidural for pain or a small catheter that goes right to the leg that will instill medication to keep him comfortable.  Last time they couldn't get the epidural in Cincinnati and he had to depend on IV pain meds which just were not cutting it.  So that made me feel better.  I just want him as comfortable as possible.  He will go to the PICU for at least one night and then to the floor for a few days.  But first we get through the next 2 weeks of casting.  He will also plan another surgery for the knees as soon as Debbie can get us on the schedule but it may be another year for this.  The sooner the better but Dr. Van Bosse is really booked.  We will pray abouth this and leave that in the Lord's hands.  He will work it all out.  Anyway.  We finished the casting around 12 noon and went to lunch.  After lunch we caught up with Kim and Peyton.  Peyton also has arthrogryposis.  He is 5.  He is also effected in the upper and lower extremities like Gideon.  We spent some time with them.  I mentioned to Kim that I forgot my face scrub and she gave me hers so I wouldn't have to walk to a store out in the dangerous streets-ha ha.  We love spending time with friends from Shriners.  We then went to get the brake on Gideon's wheelchair fixed in the therapy department.  They will have to order a new brake for him.  Back to the RMH.  After dinner we had ice cream and a Halloween movie.    After talking with Tim and the kids we were off to bed.  This morning we went to the zoo.  I will post pictures and post on that a little later today.  We are also asking for prayer as we brace for the Hurricane which will be hitting here Sunday, Monday and Tuesday.  We are in New Jersey at the Ronald McDonald House and they are expecting it to be really bad.  Please keep us in prayer as we could lose power for quite some time.  I will keep you posted.  We are blessed and know God has us in the palm of his hands.

Sunday, September 23, 2012

A Day in the Park 9/23/12

                                                     A fun day in the park

What's Been Happening?

We have been very busy here at home with school and therapies and surgeries.  Gideon continues with PT and OT and is preparing for our trip back to Philly.  Abby and Clara had their dental surgeries and did great.  They are all back into the swing of school and we are keeping busy.  Gideon and I head back to Philly on October 25th and he will have 2 weeks of serial casting and then surgery on both legs on November 8th.  We should return home around the 17th of November.  Please be in prayer for Gideon.  He keeps telling me how nervous he is about the surgery.  But he has been very sad lately watching his brothers and sisters do things he can't.  He is more determined than ever to be able to walk one day.  We know that with God all things are possible!  We will be in Philly for Halloween.  The other kids will have to go out without mom for the first time.  Dad will have to walk around with them instead of passing out the candy.  We all adjust  where we need to.  I will try to update more often.  For now I will leave you with some pics of the kids in the park.

Thursday, July 26, 2012

Therapy Day

July 26, 2012
Yesterday was Christmas in July.  We had a great time.  Santa came and presents were abundant.  All the kids were so excited.  The RMH really did a great job.  I posted pictures on facebook from my phone but can't get pictures on the blog from here.  I will post those after I get home.
Today we went to Shriners for Physical therapy and he did really well.Measurements showed he had regressed since we were here last time.  Tomorrow they are going to put him in the stander again.  We are still waiting for insurance to approve a stander for Gideon at home.  He will have his casts changed tomorrow too.  We will load him up with Motrin before we go so maybe this will help with the pain.
Gdeon's friend Gracyn is having surgery tomorrow.  Please be in prayer for her.   She was in a motor vehicle accident.  We plan to visit her on Monday.
Another friend-Avery had chemo today and is not feeling well.  Please say a prayer for her too.
Talked to Tim and the kids tonight and all is well at home.  They saw big brother Jordan in Fiddler on the Roof today.  I was so sad to miss it.
It's getting late and we need to get up early.  Will update again tomorrow.
We are so blessed!

Monday, July 23, 2012

Cast #2

July 23, 2012
Today Gideon got cast #2 on his arms.  He had told Dr. Z that he hated having his casts sawed off so Dr. Z said ok we will soak them in water and then unravel them.   So we started the soaking process when we got there and after a 1/2 hour of soaking and still not soft enough to unravel and Gideon having to pee we decided to go with the saw.  He did very well.  Casts off and off to the bathroom!  Casts #2 went on with a great deal of pain and tears but Dr. Z is great.  He tried to distract him and make it fun.  He wrapped a ninja wrap around his head and painted his face with plaster and put feathers in his head wrap.  Gideon was very tough looking and said "nobody will mess with Gideon!"  Gideon also had informed Dr. Z that he was unable to play his DS the way he casted his thumbs so to be sure to let his thumbs free this time and Dr. Z abliged and tonight Gideon has happily played his DS.
Gideon has made many friends here at the Ronald McDonald house and not all of them children.  We have met several families with children just like our Gideon and it is great to be able to share experiences.  Tonight one of Gideon's friends arrived back to the Ronald McDonald House.  FuXia came in and Gideon was so excited.  It made his night.  This really is like a home away from home.  We are very blessed to be surrounded by some wonderful families and staff here.
Tomorrow we are going to take a trip to Target to get some needed supplies and maybe we will take a walk.  Gideon is getting a haircut tomorrow afternoon too.
Tim say the kids are doing fine.  He is keeping them occupied, taking them to movies in the park and out for ice cream.  They are going to see Jordan's play at Kincaid-The Fiddler on the Roof, on Thursday and then some swimming friday and Saturday.   Gideon will have physical therapy Thursdayand Friday and then another cast change Friday and again Monday.   We fly home on Tuesday.
Please pray for good results with the casting and for Gideon to tolerate the pain and be able to sleep.  Pray for Tim and the kids at home too.  We just thank God for these Doctors here and Philly and the great people at the Ronald McDonald House!