My new casts-Orange and black for Bengals and Halloween
We arrived at Shriners at 930am. We were greeted by everyone enthusiastically as they all love to see Gideon. He was given a Halloween treat bag and a new Wii game of his choice. Not to bad. Dr. Van Bosse and his staff came in and we discussed his upcoming surgery. He will be sure to give Gideon either an epidural for pain or a small catheter that goes right to the leg that will instill medication to keep him comfortable. Last time they couldn't get the epidural in Cincinnati and he had to depend on IV pain meds which just were not cutting it. So that made me feel better. I just want him as comfortable as possible. He will go to the PICU for at least one night and then to the floor for a few days. But first we get through the next 2 weeks of casting. He will also plan another surgery for the knees as soon as Debbie can get us on the schedule but it may be another year for this. The sooner the better but Dr. Van Bosse is really booked. We will pray abouth this and leave that in the Lord's hands. He will work it all out. Anyway. We finished the casting around 12 noon and went to lunch. After lunch we caught up with Kim and Peyton. Peyton also has arthrogryposis. He is 5. He is also effected in the upper and lower extremities like Gideon. We spent some time with them. I mentioned to Kim that I forgot my face scrub and she gave me hers so I wouldn't have to walk to a store out in the dangerous streets-ha ha. We love spending time with friends from Shriners. We then went to get the brake on Gideon's wheelchair fixed in the therapy department. They will have to order a new brake for him. Back to the RMH. After dinner we had ice cream and a Halloween movie. After talking with Tim and the kids we were off to bed. This morning we went to the zoo. I will post pictures and post on that a little later today. We are also asking for prayer as we brace for the Hurricane which will be hitting here Sunday, Monday and Tuesday. We are in New Jersey at the Ronald McDonald House and they are expecting it to be really bad. Please keep us in prayer as we could lose power for quite some time. I will keep you posted. We are blessed and know God has us in the palm of his hands.